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  • Topic: About the blog | Shoot Up or Put Up | Page 11
    site 28 January 2011 at 5 33 pm 12097 Tim Keymaster stephen I ve no idea evidently not You can still use your old Shoot Up log in if it doesn t do what you want 7 February 2011 at 4 10 pm 12164 Annette A Participant stephen has found a minor glitch in my logging sheet cheers Stephen It only affects the graph of the bolusing on the 8th day I ve sent a new version to Tim to upload for those who know how to use excel quite well it s straight forward to correct for those who dont just use the new version when it arrives If anyone finds any other problems let me know I tried to find all of the them its mainly to do with where the graphs are taking their data from but there s always one that sneaks through 7 February 2011 at 4 59 pm 12165 Tim Keymaster New version uploaded and the old link should now grab the new file 15 February 2011 at 3 30 pm 12227 Hairy Gnome Participant Tim is there any possibility you can allow editing of one s own posts on the main blog Not essential I know but despite my best proof reading efforts the occasional typo slips through it s embarrassing 15 February 2011 at 4 21 pm 12228 Tim Keymaster teloz you should be able to as you have Contributor rights I ll drop you an email 10 March 2011 at 4 23 pm 12363 Tim Keymaster This is only a test after an upgrade remain calm 24 March 2011 at 11 28 am 12431 Tim Keymaster I ve just re jigged the links page to make it more user friendly and actually slightly useful http www shootuporputup co uk resources useful websites I will have missed approximately 16 9 million useful websites so could you reply here or drop me an email with the ones I ve neglected to list please Ta 24 March 2011 at 3 37 pm 12434 Dave Participant All good Can I add http www bdec e learning com that I was directed towards by Alison for a quick carb counting guide Just completed the course and whilst I m sure it s nowhere near as good as the the full on DAFNE it s a start Also for the manufacturers I d add http www accu chek co uk gb as I like their meters and you can quickly ask online for replacement batteries and books etc just don t expect them to be too quick in delivery 24 March 2011 at 3 44 pm 12436 Anonymous I would second the BDEC course good intro to carb counting Also something complete away from Diabetes http theoatmeal com We all need a larf from time to time 24 March 2011 at 3 55 pm 12440 Tim Keymaster Thanks chaps duly added 25 March 2011 at 9 02 am 12454 Tim Keymaster In other news I was looking through the stats today and loads of our traffic comes from search engine searches for terms like king charles spaniel king charles cavalier cavalier king charles spaniel and Woof http www shootuporputup co uk 2010 07 woof is one of our most popular articles More people come to Shoot Up by searching for dogs than diabetes This is so depressing I don t even know where to begin 15 April 2011 at 2 50 pm 12621 Annette A Participant Any chance of adding another converter to the RHS one that covers the change from to mmol or whatever the new version is actually in for HbA1Cs 15 April 2011 at 2 57 pm 12622 Tim Keymaster Next you ll be wanting the moon on a stick I ll have a look 15 April 2011 at 2 59 pm 12623 Tim Keymaster Do you know if there s an easy formula to convert one to the other 15 April 2011 at 3 00 pm 12624 Annette A Participant Is it sugar free If so I d like 2 please 15 April 2011 at 3 00 pm 12625 Annette A Participant Oh yes there is I have seen it I ll go hunt 15 April 2011 at 3 02 pm 12626 Tim Keymaster Wikipedia says IFCC HbA1c mmol mol DCCT HbA1c 2 15 10 929 Hmmm 15 April 2011 at 3 04 pm 12627 Annette A Participant Voila old value HbA1c 2 15 x 10 929 new value in mmol mol 15 April 2011 at 3 06 pm 12629 Annette A Participant Mine came from Diabetes UK so for once you can believe Wikipedia 15 April 2011 at 3 09 pm 12630 Annette A Participant Why do square brackets and contents disappear when looked at in the Activities tab 15 April 2011 at 3 13 pm 12631 Tim Keymaster Square brackets and what not get stripped out to probably prevent insertion of rogue code I ve got a new box down at the bottom right with a converter Amusingly it gives the wrong answer 15 April 2011 at 3 27 pm 12632 Tim Keymaster I ve taken it off and given up If anyone is better at me at basic Javascript functions then could they drop me an email please 15 April 2011 at 4 00 pm 12633 Alison Keymaster That would be handy My head is currently in the sand about the HbA1c changes after using the old way for practically my entire life I feel like a pensioner who s suddenly been told they have to measure things in centimeters and kilograms 5 August 2011 at 2 28 pm 12917 Tim Keymaster Blog latest just a small technical tweak so that member profile pages don t get indexed on search engines This should protect you from stalkers and Internet wierdos There are more than enough already on Shoot Up b 9 August 2011 at 2 23 pm 12918 Tim Keymaster Blog latest another minor tweak the section with the user pictures on right hand side now displays the top twelve contributors in terms of comments on blog posts in the last 30 days excluding me and Alison It used to display the last 15 logged in users Thought it might make a change 9 August 2011 at 2 28 pm 12919 Alison Keymaster Ah I sense someone trying to start some competition 9 August 2011 at 2 39 pm 12920 Tim Keymaster Indeed Sadly it doesn t count forum posts which is a bit of pain but hey hum 9 August 2011 at 3 13 pm 12922 Cecile Participant tim Thanks to your site s apartheid policy my suppressed horde of limericks have no voting power tut tut tut Oh and while your hands are all greasy with tweaking can t you enable users to specify their therapies pump pens pills in their profiles 9 August 2011 at 3 22 pm 12923 Tim Keymaster Thank heavens for that there s 320 odd posts in that thread now In terms of greasy hands your wish is my command I ve added a About you your diabetes text box to the profiles so you can fill in a bit more detail You can edit your profile by clicking on your name in the top right corner Profile tab Edit profile Fill in new box Don t say I m not kind to you 9 August 2011 at 4 45 pm 12924 Annette A Participant You re not kind to ckoei Oh sorry you said don t 9 August 2011 at 5 10 pm 12925 Cecile Participant annette this along with lizz s McTit will bless me with a jolly smirk til doomsday 9 August 2011 at 5 15 pm 12926 Tim Keymaster 16 August 2011 at 7 48 am 12941 Tim Keymaster Changed it back to the old style thingy as I preferred it 18 August 2011 at 10 17 am 12960 Tim Keymaster I ve added an Off topic section to the forums for discussion of things non diabetic for example what I m planning to read on my holidays We ll see if anyone uses it and will maintain delete it as required 26 September 2011 at 12 48 pm 13027 Tim Keymaster Upgraded blog to latest major release of BuddyPress which might give us some new features to play with Chief amongst these is the ability to use the search box in the top right to search the forums and blogs posts from the same place Hurrah Updated the theme to latest theme will fix the header soon 27 September 2011 at 1 28 pm 13039 Annette A Participant But I ve lost the little link View which allowed me to jump straight to the post rather than the start of the thread Can we have it back Or has it moved somewhere I cant see it 27 September 2011 at 1 48 pm 13040 Cecile Participant Click the time link to view see 27 September 2011 at 2 19 pm 13041 Tim Keymaster ckoei cool I hadn t noticed that 27 September 2011 at 6 59 pm 13042 Annette A Participant Hey Cheers ckoei it didnt even look like a link anymore 27 September 2011 at 8 55 pm 13043 Cecile Participant I m just relieved this is Shoot up if it had been Twitter a blind poking at meaningless symbols would ve caused friends favourites retweets phew 29 September 2011 at 12 27 pm 13047 Tim Keymaster If anyone cares we ve just turned down yet another offer for advertising on the site Aside from the stripykat advert on the bottom right we ve always had a strict no advertising policy Even ads from reputable pharma companies This is because I hate blogs covered in ads and I presume you do too If you re interested Alison and I share the hosting costs for the site between us They re pretty modest and so we re not prevented from running our second yachts etc 7 December 2011 at 3 42 pm 13215 Tim Keymaster More updates on the site a new look which is pretty similar to the old look but just tweaked a bit There s also a new front page which is designed to allow quick access to everything that s on the site both the forums and the blog in one place Hopefully you ll hate it and yearn for the old format again 7 December 2011 at 3 42 pm 13277 Tim Keymaster More updates on the site a new look which is pretty similar to the old look but just tweaked a bit There s also a new front page which is designed to allow quick access to everything that s on the site both the forums and the blog in one place Hopefully you ll hate it and yearn for the old format again 7 December 2011 at 6 05 pm 13281 Annette A Participant Don t like the font 7 December 2011 at 6 09 pm 13283 Tim Keymaster Interestingly enough the one at the top in one of Google s web fonts that s generated on the fly Technology and all that 8 December 2011 at 8 33 am 13284 Annette A Participant It is easier to use see on a mobile device now though that s an android smartphone not a fruit based product although I m sure it still applies 8 December 2011 at 8 59 am 13285 Tim Keymaster Is it I ve had another user on Twitter saying it s worse to look at on a mobile device I haven t actually looked at it on mine that would imply some sort of design process rather than just making it up on the fly 8 December 2011 at 12 00 pm 13301 Cecile Participant My cheapskate non fruit chops the front page category headers in half and gives Shoot Up an athletic flavour 9 December 2011 at 7 21 am 13309 Cecile Participant The home page s Recent sitewide activity takes about half a day to update though you do get it clicking the Activity tab at the top 9 December 2011 at 8 59 am 13310 Tim Keymaster ckoei that s a feature not a bug the feeds on the front page are cached to save them having to be reloaded every time someone visits thus saving wear and tear on the server I guessed that most people come and have a look at the site at most once a day or so or every couple of days so it should give most people an overview of what s going on The activity tab is as always the place for your latest Shoot Up fix 9 December 2011 at 9 38 am 13314 Cecile Participant tim Pah You should change Recent to Past then 9 December 2011 at 10 49 am 13316 Anonymous Well I like the new look Its rather tastefully done in various shades of grey and I like how if you hover the curser over our avatars our name comes up Little things please little minds I also have to agree that apart from the blatant advertising its free from picture noise less is more Well done Tim and Alison 9 December 2011 at 11 07 am 13317 Tim Keymaster Thanks Mustard I wanted it to be easy on the eye I hate forums that have too much going on especially forums that allow signatures at the bottom of every post awful just awful The blatant advertising is a very important part of the site I think everyone should do their Christmas shopping over at stripykat com the Kindle cases are selling like hot cakes 14 December 2011 at 9 04 pm 13368 Anonymous tim Anyword on how the mobile side of the site goes I ve gone from it being rather cluttered to just getting a blank page when I click on forums the blogs page works though Is this payback for complaining 14 December 2011 at 9 28 pm 13369 Tim Keymaster furrypaul damned right next complaint and you re banned from the site Nah I haven t looked at it yet but it s working its way up the list 12 January 2012 at 3 03 pm 13455 Tim Keymaster furrypaul I ve tweaked the site and it should now display better on a mobile device Can you let me know if it doesn t 12 January 2012 at 3 03 pm 13554 Tim Keymaster furrypaul I ve tweaked the site and it should now display better on a mobile device Can you let me know if it doesn t 19 January 2012 at 1 41 pm 13616 Tim Keymaster If anyone cares Shoot Up is now on a new hosting platform You shouldn t really notice any difference aside from hopefully a slight speed increase 19 January 2012 at 7 37 pm 13621 Anonymous Whatever happened with the transfer at Lunch its sorted my phone out I can see the site again in a readable form don t press any more buttons on the server I ll do the same with my phone 20 January 2012 at 9 24 am 13634 Tim Keymaster furrypaul I fixed that about a week ago But yesterday I also had to remove the compression doubry which might effect how you see the site too if you were using an older browser doubry being a technical term 20 January 2012 at 10 25 am 13636 Anonymous The update last week let me access the site on the phone again but this ones actually made it so I can use it I d been meaning to drop you a line to let you know but I m more often on phone than by a pc 20 January 2012 at 10 29 am 13638 Tim Keymaster Ahhh that ll definitely be the compression thing then 20 January 2012 at 10 31 am 13639 Tim Keymaster In other news I m working on tweaking the front page so that it updates more quickly You have to wait a day or so for the latest posts etc to appear which isn t ideal If any readers are experts on incorporating feeds into WordPress pages then please do get in touch 20 January 2012 at 4 48 pm 13650 Tim Keymaster Front page now tweaked should update recent activity news posts and so on instantly If it looks a bit weird then it might be you re caching the old CSS file it ll sort itself out soon enough 13 February 2012 at 10 44 am 13739 Tim Keymaster There s a new front page I would like to say this was a planned change However a plugin update destroyed my old front page and cough I didn t have a backup because I m an idiot So a new page was rapidly rebuilt from scratch D oh 6 March 2012 at 7 58 pm 13842 Tim Keymaster Right I m planning to put in some actual and real time and effort into ironing out some of the bugs and crappy features on the blog and forums So if there is anything in terms of features you would like to see on the blog or anything that particularly annoys you then let me know by adding to this thread I will try and solve the more realistic and sensible issues 13 March 2012 at 11 16 pm 13880 lizz Participant Realistic and sensible What could be more realistic and sensible than a free chocolate bar dispensed every time you log in 14 March 2012 at 9 11 am 13881 Tim Keymaster lizz sounds good to me I ll see what I can do 14 March 2012 at 11 10 am 13882 Annette A Participant Sugar free or not affecting bg I hope but tasting like proper chocolate Please I can imagine a desktop having a dispenser drawer but what about laptops And smartphones well now that would

    Original URL path: http://www.shootuporputup.co.uk/forums/topic/about-the-blog-2/page/11/ (2016-02-17)
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  • Activity
    of diabetes 2 years ago Sadly it s a OS X 10 9 problem 10 8 and below worked OK after ignoring the warnings and tweaking a few things but 10 9 has broken the dodges Medtronic have told me the delay is that they have to pass any Tim replied to the topic Dual wave boluses in the forum Living with type one 2 years ago Hmm interesting sounds like more experimentation is in order And Mike taking notes rather than making it up each time Whatever next Mike replied to the topic Dual wave boluses in the forum Living with type one 2 years ago I think you ve got exactly the right idea but infuriatingly you just need to endlessly experiment to see what works best 75 25 over 1 hour is pretty much a nothing going on here setting for me like if I m sitting down to eat at 4 0 and want to make sure my slowish but not really slow meal has a decent headstart My more profound DWs might Read more Annette A replied to the topic Dual wave boluses in the forum Living with type one 2 years ago I find that using the percentages the other way round works better just a small amount about 25 as an immediate followed by the rest over about an hour It does depend on what I m eating the faster acting the carbs are the more I put in up fromt It seems to work well for me that way but it will depend on how well or otherwise you Read more Tim commented on the post Logging the tempestuous seas of diabetes 2 years ago Java is always a pain it s a bit of an out dated technology in my view lizz commented on the post Logging the tempestuous seas of diabetes 2 years ago Yes and Java is part of the problem I seem to recall Tim commented on the post Logging the tempestuous seas of diabetes 2 years ago Being a web based application I thought it would work with any computer unless they re using some proprietary technology which isn t Mac friendly Do you get Java on Macs lizz commented on the post Logging the tempestuous seas of diabetes 2 years ago Um you have to log in to Medtronic and use a system on their site but my computer is a mac and they don t make the software compatible Tim commented on the post Logging the tempestuous seas of diabetes 2 years ago Is it only a web based interface with Medtronic or can you use software on your local PC Tim started the topic Dual wave boluses in the forum Living with type one 2 years ago One for the pumpers out there I ve been messing around with dual wave boluses recently Quite often I ll have something very carby and put in a correspondingly large bolus This leads to a big dip

    Original URL path: http://www.shootuporputup.co.uk/activity/?acpage=2 (2016-02-17)
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  • Interview: The Pendsey Trust | Shoot Up or Put Up
    the DREAM Trust much of the funding for the children s medical care has come from Indians And in regards to politicians claims that they no longer require aid I challenge them to look in the eyes of the parents of a child dying from diabetes because they simply cannot afford their medical care SSU It s perhaps a sadly obvious question but what happens to people who can t afford insulin Is there any form of social health safety net LL Sadly in many developing countries there is simply no back up for those who develop diabetes but cannot afford insulin In some cases parents even proactively take the decision to allow the diagnosed child to die as paying for their medical care will mean that their other children will go without food and education as Dr Pendsey witnessed in the case of the death of a young girl who inspired the foundation of the DREAM Trust Even when families make the decision to fund the child s medical costs frequently they can t afford a steady supply of insulin and as a consequence the individuals suffer painful side effects such as stunted growth amputations and are more likely to slip into diabetic comas The situation is really complex for example many private clinics will only release a few weeks supply of insulin at a time and the journey from the countryside to collect it can be long and expensive for families requiring one parent to miss one or two days of work and therefore pay These are all issues which anyone trying to help people with diabetes in the developing world have to face SSU In developing countries there can be a stigma about diabetes What plans are there to educate non diabetics LL This is true I saw widespread discrimination against those I met at the DREAM Trust A few examples include a girl who was abandoned at an orphanage by her parents when they discovered her condition children being forced to eat from separate bowls and cutlery and widespread bullying in school I also agree that educating others about diabetes removes the fear factor and is the way that individuals like those I met in India will overcome the stigma they face However without any plans or funding for wide scale education in the developing world a lot of the momentum for this is going to have to come from those with diabetes themselves I believe that by providing these individuals with a strong education and enabling them to achieve their potential they will earn respect in society and thus be in a strong position to educate others about diabetes Manda the young girl who trained as a nurse whom I mentioned above is a prime example of this As a respected member of society she is now in a strong position to influence others opinions about diabetics I hope even for the younger patients who we help being able to look to those who have achieved feats like Manda a real life dream girl and the knowledge that they have the chance to do similar will help them fight the stigma they face SSU How big a problem is this LL The concerning thing is that due to the lack of international interest or funding the numbers affected by the situation really are unknown The IDF estimate that there are 80 000 100 000 are in need of urgent help but the number could be much higher It is assessed that every year many die undiagnosed with their deaths attributed to other illnesses such as cholera However based on the work of the International Insulin Foundation it is estimated that as a world average 98 of children diagnosed with Type 1 diabetes survive more than 6 years however in sub Saharan Africa only 1 do SSU How can we help LL There are so many ways in which people can help and not all of them involve money 1 Of course fundraising is a large part of what we hope to do whether it be a sponsored event doing something crazy I m trying to psyche myself up for a skydive or simply a donation We have loads of resources to help you including an ideas pack and sponsorship forms Any money goes such a long way and as a small charity we have virtually no costs To give you an idea of where your money might go 40 sends a child to school for a year whilst 60 pays for a girl to train as a nursing assistant 2 If you want to make a longer more serious commitment around 200 a year pays the medical costs for a child with diabetes You will receive photos of the child be able to write and send gifts if you want and even visit them in India My family sponsor a 9 year old girl Nandhini who I met whilst in India Sponsorship of a child is a lifeline for their family who will feel reassured that their child will receive the medical care they need 3 Become a Pendsey ambassador We desperately need people who like to talk tweet blog and network to spread the word about the situation for kids with Type 1 diabetes in the developing world and the work of the Pendsey Trust This includes people who are members of groups who may like to have a talk from us or conversely people who would happily research such groups or speak on our behalf 4 Any other help that people can offer whether this be corporate sponsorship raffle prizes ideas skills sharing or simply wanting to find out more about what we do In any case I would ask anyone who is interested or wants to know more to contact d i t e n s t u t r we are a friendly bunch and always excited to hear from people Thanks for speaking to us Lucy and watch this space

    Original URL path: http://www.shootuporputup.co.uk/2013/04/interview-the-pendsey-trust/ (2016-02-17)
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  • Cycling from John O’Groats to Land’s End | Shoot Up or Put Up
    and unfortunately my pancreas decided not too co operate As usual I stuffed in half my amount of insulin for breakfast and set off with a backpack full of Lucozade and Fruit Pastilles which I scoffed down from time to time But on my return I was a lowish 4 0 and dropping so I had lunch without injecting anything Up I went to a modest 11 two hours later two units of humalog and I dropped like a stone back down to 2 9 Bah Again for dinner I put in a very small amount compared to what I was eating and two hours later I was only up at 8 0 So there we have it one bit of moderate exercise and I m wildly sensitive to insulin One post cycling unit seems to be equal to about five lazy units Judging the amounts is as always good wholesome fun and I made a mental note to seriously reduce the amounts I put in next time I m out on the bike What top tips do you have for exercising without hypo misery While I m here I ll finish off by telling you that Stephan is doing his ride partly because he s insane and partly to raise money for Macmillan Cancer Support and Dorothy House Hospice both wildly worthy causes If you fancy flinging him a few pennies his donation page is here http uk virginmoneygiving com stephanhunt If you re just interested in reading about what it s like to cycle from John O Groats to Land s End his blog which he s updating from the road is here http 2010jogle wordpress com If nothing else drop him a comment to say hello it s lonely out on them there roads Share on social

    Original URL path: http://www.shootuporputup.co.uk/2010/06/cycling-from-john-ogroats-to-lands-end/ (2016-02-17)
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  • roman rumble | Shoot Up or Put Up
    day for when I can Needless to say Wyrenose and Hardnott conquered non stop in costume Pictures to follow Posted via my generic mobile device Category Charity exercise Tags roman rumble Day three Terrible Internet connection Will have to write it up tomorrow Fifty miles in hot sun in Roman costume Sweaty Very sweaty Posted via my generic mobile device Category Charity exercise Tags roman rumble Day two I write this from my palatial suite while Stephan lurks grumpily in his cramped garret I think I got the better room today I got the better room yesterday too hurrah After our promised breakfast we set off covered a feeble eight miles and then stopped at our first Roman fort It was the turn Read More Category Charity exercise Tags roman rumble Day one I m currently sitting here in a rather nice bed and breakfast in Corbridge having completed the first day of the Roman Rumble for the wonderful Pendsey Trust Today we have been blessed with absolutely wonderful weather which is a bit of the disadvantage in that wearing a Roman costume in hot weather is not very Read More Category Charity exercise Tags roman rumble Shoot Up is interviewed As I lay in my basket reading the latest news on my tablet this morning my tablet is specially adapted to allow me to use it with my paws I was delighted to see your soaraway Shoot Up being interviewed This time it was by our favourite charity the Pendsey Trust and you Read More Category Charity Tags charity roman rumble Fame at last Fame as they say at last Your soaraway Shoot Up and the Roman Rumble has been featured my local newspaper Fans of Edinburgh suburbia will already be familiar with the Currie and Balerno news with

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  • Shoot Up or Put Up › Lost Password
    Put Up Please enter your username or email address You will receive a link to create a new password via email Username or Email Log in Register Back to Shoot

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  • Diabetes inventions | Shoot Up or Put Up
    diabetes geeks he wears a Medtronic Veo insulin pump filled with Humalog and uses Bayer s Contour Next Link blood glucose meter View all posts by Tim Post navigation The pig poke Intermission 20 thoughts on Diabetes inventions Alison 24 November 2009 A cure is a long way off Tim you re so cynical for one so young but I agree with you completely Ever since I was a child I wanted to be able to look at my watch and see what my blood sugar was when CGMS came along that was a monumental leap forward for me Faster acting insulin would be good and Smart Insulin sounds good where it sits in the body and only starts working when it senses your blood sugar is above a certain level http www diabetesmine com 2008 11 smart insulin it knows what youve been eating html comment page 1 Now that s clever Log in to Reply Tim 24 November 2009 Alison I agree with you completely First time for everything Smart Insulin sounds exciting bet it won t work though I think pumps CGMS and critically the two talking to each other are the way forward in the short term That gets me excited well mildly excited after all everything s relative Log in to Reply Alison 24 November 2009 Tim This is so terribly dull we re in violent agreement on the way forward Log in to Reply Tim 24 November 2009 Alison How disappointing Log in to Reply Mark 24 November 2009 In recent history what single development has made life easier Arguably two developments the insulin pump and the cgms However Tim s recommendations for a good whiskey come in a close third Log in to Reply Tim 24 November 2009 Mark It s whisky without the e damn you proper Scottish whisky None of this American whiskey muck Log in to Reply Mark 24 November 2009 Tim And that s what I get for being in such a hurry We Americans are always rushing things Very sad Log in to Reply Tim 24 November 2009 Mark It s okay Mark I forgive you Log in to Reply Lesley 24 November 2009 Its encouraging to see that even the white coated ones are thinking increments rather than cure now as per the closed loop project at Addenbrooke s They have big dreams for the future but intend to get each new increment available to the pancreatically challenged masses They are now running clinical testing in patients own homes for a pump CGMS algorithm system for use overnight My personal favourite at the mo would be non invasive BG testing Followed by a pump with AI that could interpret patterns and make suggestions for altering my bolus rates or insulin carb ratios rather than simply suggesting a correction bolus Log in to Reply Tim 25 November 2009 Lesley Yes Non invasive blood testing would be utterly fab Log in to Reply Rachel 25 November 2009 http www

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  • Islet cell transplants in Scotland | Shoot Up or Put Up
    all posts by Neville the Newshound Post navigation The ungrateful diabetic How do you know if you re getting good diabetes care 4 thoughts on Islet cell transplants in Scotland Karen 5 July 2011 hello a couple of years ago we some mums of T1 kids attended a DUK meeting where their president Richard Lane was the speaker Probably you know where I am going with this but if not here goes He himself is T1 and suffers from the no awareness thingy His story was about being diagnosed in his early thirties and how the impact especially the keeling over without notice affected his work and home life Turns out he was I think the first ever person to receive islet transplant It took donations from three bodies folk that had been declared dead but who s family had agreed to donate organs etc before his pancreas was up and running enough for him to quit injections altogether I was moved to tears over the whole donation bit where he would get a call in the middle of the night to say a donor had been found only to get to the hospital to say the family of the dead person had changed their mind But after three donations he was diabetes free I cried at that aswell Being diagnosed T1 is shocking but imagine being told by the doc to stop your injections you dont them anymore I cant imagine that at all I am sure I would still carry all the equipment anyway just incase I cant recall how long the transplant worked It was a few years I think and then it wore off To sustain the level of health his pancreas needed he would have had to undergone more transplants and if I recall he had other health issues which meant he couldnt or didnt want to endure the effects of the anti rejection medication So he is on a pump and cgm and as he was up there speaking for over an hour I was wondering what his bloods were and if he was ok but no need to worry as the alarm went and out came the jelly babies Hearing his story was enlightening and speaking to him afterwards was one of the most positive diabetes conversations I have ever had I came away convinced that a real cure for diabetes would be found during the lifetime of my 6 year old but not convinced that the cure was going to come by way of islet tranplants from donors as demand would always outstrip supply Now if they could just find a way to grow your own Log in to Reply Kaitake 6 July 2011 That s so good to know that more than one bunch of researchers is hunting for the cure Here in New Zealand Professor Bob Elliot of LCT Global has had some good success with human clinical trials of micro encapsulated pig islets The encapsulation means NO anti rejection

    Original URL path: http://www.shootuporputup.co.uk/2011/07/islet-cell-transplants-in-scotland/ (2016-02-17)
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